Trey's Preschool Christmas Party

Trey had his preschool Christmas party last week. It was really cute! Trey didn't want to have anything to do with it. The whole time he was looking at the other kids like what are you guys doing. The only time he looked half alive was when they sang jingle bells and all of them had bells to shake. His preschool always does a good job with the Christmas Party. I guess Trey wasn't really into it because my brother and his family had just showed up to our house from California five minutes before we had to leave. I think he just wanted to stay home and play with his cousins. When we left I asked Trey why he didn't sing. He told me "Mom, I don't know how to sing" He is so silly.

SANTA

I forgot to post about seeing Santa on Dec. 6Th. Every year Farr West Elementary does Doughnuts with Santa. You get to see Santa and tell him everything you want for Christmas. He takes his time and chats with all the kids, Afterwards you get some yummy chocolate milk and a delicious doughnut. I always try to be there right when it starts so I don't have to wait too long. This year we didn't have to wait in line very long. The kids love seeing Santa. I don't know if Tarrin is getting a little old but his face kinda says it all. Santa gave the kids ring pops, which they loved. Maisey loved it and got so sticky I had to take her home and clean her up before we ran errands for the day. My kids look forward to Doughnuts with Santa every year.

STICKLER SYNDROME

For those of you that know me well and know about our situation, You have heard all about Stickler Syndrome. For those of you that have no idea what it is you are not alone. It only affects about 1 in 10,000. It is a connective tissue disorder affecting the eyes, ears, joints, and sometimes the heart depending on what type you have. When our first son Tarrin was born we had no idea what it was either. Tarrin was born with a soft cleft palate, which we had repaired when he was seven months old. When he was one and a half we noticed his right eye turning in and went to see a specialist. Dr Hoffman at Primary Children's informed us that he thought Tarrin had Stickler Syndrome. Tarrin had high myopia and some of the physical features of someone with Stickler Syndrome. We looked it up on the Internet and were a hundred percent sure that is what he had. We took him in and had genetic testing and it came back that he had it. At this point we were told that it must have been sporadic(25% sporadic, 75% hereditary) To date they have never had someone with Stickler Syndrome not show any signs. Which Kevin and I have no signs, so we thought it must be sporadic. Tarrin has had four eye surgeries and has tubes put in his ears for fluid twice. A couple of months ago I took Tarrin in to see the eye doctor(he goes every six months) and I had Maisey with me at the time. Dr. Hoffman always takes his light and checks the other kids eyes to make sure everything is fine. When he looked at Maisey eyes, He told me he wanted me to make an appointment for her to be seen. I didn't want to wait so I convinced him to look at her then. Well he dilated her eyes and took a look and she has high myopia just like her brother Tarrin. He then told me I should get her checked for Stickler Syndrome. I can't put into words how it felt to get this news and have to call Kevin and tell him. I think my heart was breaking and I was so mad that my son and now my daughter would have to deal with this. I wish I could take it away from them. We took her to the geneticist and found out that she more than likely has Stickler Syndrome. He told us since we already have one child with the syndrome, that we know how to take care of a second and it's our own personal decision if we get her tested. They were baffled by our family because they have never seen a family with two children with the syndrome and the parents not have it. One of the geneticists said something like its probably one in a billion. Yesterday Kevin and I took Maisey to the E.N.T to make sure her ears are okay and to have him check her palate. Both her ears had fluid in them and since she is more susceptible to ear infections and hearing loss we are getting tubes put in next month. He checked her palate and she has a submucous palate which means the muscle is going the wrong way. Only one in five need surgery for it and he said that Maisey's palate looks pretty good. I have felt so many different emotions these past eight years from dealing with this Syndrome and I finally think that I have grown up a little bit. Driving back from the Hospital I was overcome with gratitude to my Heavenly Father for trusting in me to have these beautiful babies and take care of them in the way that they need. I am so thankful that Tarrin and now Maisey have such mild cases of the syndrome. I am also thankful to have so many capable Doctors in S.L.C at Primary Children's Hospital. Dr. Munz said that he wouldn't even know she had it unless we told him and he sees a lot of people with Stickler Syndrome. I am thankful to all of our family for their support and for my mom who puts Tarrin and Maisey's name in the temple every week.

Christmas Card

My Christmas cards were sent out on Monday and that was the first thing that I have done besides Christmas shopping that I have slowly been getting. And yes the kids can never all smile and look at the camera at the same time. It doesn't matter if I take a hundred pictures. I barely put up my tree on Tuesday.(Leave me alone Mandy) I know I'm the worst parent. It seems like everything has been so busy lately. December seems to go by so fast but it is so stressful. I want things to calm down so I can just enjoy what Christmas is all about. I am excited for my brother and his family to come stay with us through Christmas. My friends Tami, Amy, and Lea will also be around and I am so excited to be with family and friends throughout the Holiday.

Happy Birthday Kevin

I just wanted to tell my wonderful husband Happy Birthday today. The kids and I love you more than anything. We are so grateful to have you in our lives. You are such a blessing in our family. Thank you for always doing everything you possibly can to strengthen our family. We love you!!
Just a few of Kevin's wonderful qualities.
1. Great Listener.
2. Loving husband and Father.
3. A great Friend.
4. Is Trustworthy.
5. Is always Honest.
6. Cares about other people.
7. Puts other needs before his own.
8. Is always making me laugh.
9. Has a great sense of humor.
10. Treats me with respect.
Okay so maybe a little more than a few.

IT'S DEAD

It has given me comfort, happiness, joy, and pure bliss. It doesn't care when my hair is wet, If I am in need of a shower, come home late, put dirty towels on it or eat cookies on it. It has supported mine and Kevin's weight and now it is gone. It is no longer the source of comfort that I once thought it was. Now it is mean, lumpy, and too small to fit us and the children who like to come sneak in and lay on it. GOODBYE MATTRESS! It has been replaced. It was like a toxic relationship that you know you shouldn't have. It no longer supported me and was making mine and Kevin's backs heck. Kevin saw the ad in the paper and that was it. Tomorrow we will be sleeping like we are in heaven. We will wake up to a good nights rest and we won't be kicking each other in our sleep. I am not sad and I will not cry when they take it away. I will rejoice in the fact that it no longer has a hold over me and my sleep. So goodbye mattress, you will not be missed.

THANKSGIVING

This year for Thanksgiving we went up to Kevin's Parents cabin. We had a really nice time. We ate lots of food and enjoyed each others company. Kevin's brother Rob threw my niece Lyndsey so high up in the air, I think she's used to that sort of thing. I read some and visited. Kevin went out and shot the gun with the kids. Maisey kept crawling up the stairs and I was so worried that she was going to fall. My kids got to play with all of their cousin and Tarrin and Wyatt got to have a sleepover the night before. We had a good time.